The Springwell Project brought together people with a learning disability and complex needs from across Sussex to share their experiences of using specialist NHS health services and to explore what needed to change so that they can become more involved and more in control of their care right through from referral to discharge.
The Springwell Standards, access support tools and resources on this page are the results of this collaboration.
Easy Read Springwell StandardsThese are four clear standards our services working with people who have a learning disability have promised they will meet. The Springwell Standards say what you should expect when you are referred to our community learning disability services.
Team Springwell is a group of people who have a learning disablty. They are skilled experts by experience in learning disability and complex needs. The team is able to understand and speak up confidently about learning disability health care.
There are over 500 leaflets about health and wellbeing to print and accessible videos to watch on this website.Open Easy Health website
This page has lots of good easy read information, for example leaflets about learning disability, mental health, physical health, medication and more.
These films were made by Team Springwell for people with learning disability, support workers, carers, family and our staff.
They explain the specialist learning disability health services available in Sussex and how you can be more involved in your own health care.
Our standards Our service
Initial assessment role play Questions and answers
This is an integrated team which includes specialist learning disability health services.
If you have a mental health problem you may need to get help from our mental health services.
We will make sure all our mental health services can help people with a learning disability.
Sometimes the specialist learning disability teams work jointly with the mental health teams.
If you are having thoughts and urges about hurting yourself or ending your life or if you are worried about someone else who might be having these thoughts and feelings, you can find information to help here:
If you would like to find out more about Learning Disability Service User Participation and the Springwell Project you can contact:
Patient Experience is how we listen and learn from the people who use our services.
People Participation is about how we include the voices of people with lived experience (experts by experience) to help design, develop, deliver and evaluate our services.
Reasonable adjustments to communication that individuals with learning disability and/or autism should expect in specialist hospital and residential settings.
This is an approach to support communication for people with different and varied expression and understanding.
Using this approach is very important to enable people with a learning disability to be involved in their care.
Principled ways of working was a conference held in November 2017.
The conference was about peer support, co-production, service user involvement and experts by experience in mental health services.
As a result of the principled yays of working conference, experts by experience in mental health services across Sussex made the principles of peer support charter set of standards.
Watch a video about peer support in mental health services
Triangle of Care
Triangle of Care is a membership launched by the Carers Trust in 2010. Sussex Partnership NHS Foundation Trust is a member of Triangle of Care.
Triangle of Care has 6 standards about keeping carers included, informed and supported when they are caring for someone with mental health difficulties.
The NHS Accessible Information Standard is about making sure that organisations support the information and communication needs of patients, service users, carers and parents with a disability, impairment or sensory loss. The government says that all NHS care or publicly-funded adult social care organisations must follow the NHS Accessible Information Standard
Care and Treatments Reviews (CTRs) are for people with learning disabilities, autism or both. CTRs help make care better for people whose behaviour is seen as challenging and/or for people with a mental health condition.
HEKSS supports the delivery of excellent healthcare and health improvement to the patients and public of England.
HEKSS funded the Springwell Project.
Heads On is our charity which aims to help people with mental health problems to feel supported, to stay active and to be more involved in their communities.
The Aldingbourne Trust supports people with learning disabilities and/or autism to live independent lives.
The Aldingbourne Trust coproduced the Springwell Project with Sussex Partnership.