Research

Making care better

Centre for Dementia Studies. One of the aims of Our 2020 Vision is is to make sure earning from research is used consistently and systematically to improve quality.

We are now the most active mental health research organisation in the south of England  and more than 9000 participants have taken part in high quality research studies. Indeed during 2015/16 we were the highest recruiting mental health trust in England . We have generated over £9 million in income and have more than 600 papers affiliated to us in peer-reviewed journals. We have strong academic partnerships and our reputation for clinical excellence is attracting leading clinical practitioners and researchers to Sussex.

We attribute this success to our patients who take part, to staff in our team and to other clinicians in the Trust, by paying attention to all aspects of the research process, from design of new studies, to delivery of existing research and to the translation of findings into practice.

Design: Being involved in research is more than simply taking part in a study. We aim to include the expertise of people with ‘lived experience’ in each stage of the research process, from study design through to delivery and translation into frontline care. We collaborate with academic partners and our Lived Experience Advisory Forum (LEAF) to ensure that our research activity is developed locally to address issues of great concern to the people that use our services. Examples include, our Centre for Dementia Studies with its programme of research and education to improve the quality of life for people with dementia and our programme of research in Youth Mental Health, based on the belief that intervening early will lead to better outcomes.

Delivery:  Our research ‘opt-out’ enables us to offer research opportunities to more people using our services in order that they are routinely offered opportunities to take part in studies. Our research portfolio covers a range of areas including: OCD, distressing voices, dementia, links between physical health and mental health, preventing long-term social problems in young people and health interventions for people who gain weight from taking medication. We Further involvement in research continues to be provided by our ground-breaking Research Network - this is a community of staff, patients, carers - in fact anyone who is interested in mental health research. Members of our Research Network are kept up-to-date about research within the Trust, including seminars, regular updates and our annual Research Magazine.

Translation: Our research activity has played a significant role in improving the quality of services we offer to vulnerable people in public places (Street Triage), young people experiencing a first episode of psychosis (Early Intervention in Psychosis Services), people in crisis (Crisis Resolution Teams), people distressed by hearing voices (Sussex Voices Clinic) and people experiencing OCD (The OCD Clinic).

As a founding member of the Kent, Surrey and Sussex Academic Health Science Network, it is our task to drive innovation and improvement by translating research into clinical practice. To achieve an even closer relationship between research, teaching and clinical innovation we are developing Clinical Academic Groups (CAGs). These have areas of speciality such as psychosis, mood and anxiety, dementia, or complex care that will enable our clinicians to contribute further to the design and delivery of research and education. These groups create a mutually beneficial environment where research informs clinical care and clinical evidence feeds back into further research. CAGs can also link to specialist centres of innovation, such as the Sussex Mindfulness Centre and the Centre for Dementia Studies. The Sussex Mindfulness Centre and the Centre for Dementia Studies are examples of how we have structured our services to ensure that the learnings from our research are translated into real changes in how we help the people in our care. 

Click here to find out more about our current themes of research and to contact our Research Team.

Research Data Privacy Statement

As an NHS organisation we use personally-identifiable information to conduct research to improve health, care and services. As a publicly-funded organisation, we have to ensure that it is in the public interest when we use personally-identifiable information from people who have agreed to take part in research. This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the UK Policy Framework for Health and Social Care Research

If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer who will investigate the matter. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner’s Office (ICO).

Our Data Protection Officer is Kirsty Gibbons and you can contact them at Information.Governance@sussexpartnership.nhs.uk

RESEARCH NETWORK

Our Research Network is a community of Sussex Partnership staff, researchers, patients, carers of people who joined because they are interested in research and/or have taken part in research or attended our research events. We send out emails and letters to give you information about research studies, recent news and events. We do not pass your name to anyone outside the organisation.

Our Research team is leading and participating in nationally important research into mental health conditions and treatment. By joining the network we will collect your name, preferred method of contact (address, email and/or telephone number), whether you are a service user, carer or staff member and diagnosis (optional).

Once you join the Research Network your details will be registered with the Research Team and you will receive regular information about research within Sussex Partnership.

Selected members of our Research Team will regularly check which studies are available to you and send you information about these studies, you can then choose to take part if you want to. We will not access your medical notes without your consent.

If you would like to withdraw from the Research Network please use one of the contact methods below. Please provide us with your full name in order for us to adjust our records accurately.

Email: research@sussexpartnership.nhs.uk 

 

Telephone: 0300 304 0088

 

Address: Research Network

Research & Development Department

Sussex Education Centre

Nevill Avenue

Hove

BN3 7HZ

 

 

RESEARCH CLINICS

All of our four research clinics are embedded within NHS services: the Flourishing Families Clinic and the OCD Clinic provide health & wellbeing interventions for service users engaged with the Improving Access to Psychological Therapies (IAPT) services which provide primary care; whilst the Voices Clinic and the Immunopyschiatry Clinic are both embedded within the Assessment Treatment Service (ATS) which provide secondary and tertiary care. All research clinics collect routine (collected normally as part of your clinical care) clinical data about the service users accessing their clinics so that they can monitor how the clinic impacts on their health and wellbeing and so that they can look at how best to make service development decisions.

 

Patients receiving therapy will continue to receive their usual care and will be given the opportunity to find out about and take part in research studies to help improve the quality of the interventions we offer.

 

We will only use enough of your personal information that will be relevant and necessary for us to carry out various tasks within the delivery of your care.

 

We will keep your information accurate and up to date when using it and if it is found to be wrong, we will make it right, where appropriate, as soon as we can.

 

We will only retain your personal information for as long as necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, regulatory, accounting, or reporting requirements.

  

To determine the appropriate retention period for personal information, we consider the amount, nature, and sensitivity of the personal information, the potential risk of harm from unauthorised use or disclosure of your personal information, the purposes for which we process your personal information and whether we can achieve those purposes through other means, and the applicable legal requirements.

 

If you would like to withdraw from your Research Clinic please use one of the contact methods below. Please provide us with your full name and the name of your clinic in order for us to adjust our records accurately.

 

Email:  research@sussexpartnership.nhs.uk  (please add Unsubscribe from Clinic in subject)

 

Telephone: 0300 304 0088

  

Address: Sussex Partnership Research & Development Department

Sussex Education Centre

Nevill Avenue

Hove

BN3 7HZ