We recognise the term gender dysphoria can be difficult for some individuals so we are using the term gender incongruence. We know that having a label isn't something that everyone feels okay with but it is necessary to be able to access some of the treatments provided at the Sussex Gender Service.
Sussex Gender Service
We're an NHS adult gender service pilot in Sussex, which has been commissioned to provide local transgender healthcare for trans and non-binary people.
This includes assessment and diagnosis for gender incongruence which involves a holistic assessment of an individual's needs and offers referrals and signposting to other services.
About the Sussex Gender Service
The Sussex Gender Service is staffed by an experienced multi-disciplinary team and receives clinical support from the gender identity clinic at Nottingham Centre for Transgender Health. We have care navigators with lived experience that work with people who access our services to provide support and signposting to local organisations.
The service follows the same service specification from NHS England as other gender service pilots, which is similar to the existing gender identity clinics.
The service is a two-year pilot which may be extended for a further year, following an independent evaluation.
We can only see you if you're registered with a GP in Sussex, and are already on the waiting list of one of NHS England’s seven national gender identity clinics.
We offer a range of specialist treatments including speech and language therapy, psychological support, referrals for hormone therapy, surgery, fertility preservation and hair-reduction.
We will make sure that we support you to be well informed about any choices that you make by sharing knowledge, explaining options, promoting health and supporting you to make decisions that are right for you, and at your pace.
Care navigators
Care navigators are trans, non-binary or intersex (TNBI) community members who work alongside the Sussex Gender Service to offer you help and advice. The role is still under development and welcomes your feedback. The aim is to support you as you journey through the service pathways and help you access information about the Sussex Gender Service. They can support you with a variety of issues while you are seen by the service, through group and individual support.
Care navigators are employed by The Clare Project and work closely with the Sussex Gender Service, but are independent of the NHS.
Please find more information about care navigators on The Clare Project website.
Here's some information about what you can expect to help you feel more confident and help make your first appointment feel a little easier.
Appointments may be face to face or be held virtually. We always try and accommodate your preference for the type of appointment.
At your first appointment we'll talk about how things are for you. This will be between yourself and a clinician, who may be a nurse, GP or a psychologist.
We'll ask you questions so we can establish some background information about you and your gender identity. We'll discuss with you about what NHS treatments you are hoping to access.
Don’t worry if you're unable to answer some of the questions. We don't expect you to have all the answers. This is a chance for us to chat with you about you and your gender identity, what treatment options are available, how we can help, and any treatments you may wish to have.
After your first appointment you will be offered a further appointment. This is because we normally do two assessments before we can give a diagnosis of gender incongruence.
Once a diagnosis has been given, our clinicians will help support you to make informed decisions about any treatment you decide to have. They will be able to explain how you can access treatments, what you might need to do to prepare, what they will involve, and any potential risks there might be.
The treatments we offer in-house, or we can refer you on to, include:
Hormone therapy
This is used by transgender and non-binary people to produce physical changes in the body called secondary sex characteristics. This can help better align your body with your gender identity. One of our doctors will assess your suitability for hormone treatment and make recommendations.
Speech and language therapy
Our speech and language therapist will offer specialist voice and communication therapy that can help you develop a voice that is congruent with your gender identity.
Hair reduction
While not everyone will want or require hair removal, it is a common step for many people when transitioning. Hair reduction on the facial area can help you achieve the physical appearance you want.
Our staff will be able to refer you to a number of external NHS approved providers with a number of treatments for hair removal on the facial area such as laser-based treatments and electrolysis. Types of treatments and their frequency will vary depending on your hair type (such as colour and thickness). Clinicians can give you information on how long each treatment will last, how effective it could be, and any side effects such as redness and post-treatment care.
Fertility preservation
Hormone treatments can affect fertility, and some gender affirming genital surgery will have a non-reversible impact upon fertility. It is important to give this consideration as, for some people, having a child that is biologically related to them can be important. Also, your feelings about your fertility now may be different in the future as you get older, or your circumstances change. We can help to refer you to a service that can help preserve genetic materials by providing storage of embryos, oocytes and sperm for up to 10 years.
Surgery
We work with the Nottingham Centre for Transgender Health to offer onward referral for certain types of surgery that are available on the NHS. These surgeries aim to align your body with your gender identity and identity expression goals. The following surgeries are available through the NHS for trans and non-binary people
Transmasculine (including non-binary) people may want to access:
Mastectomy/top surgery
Mastectomy (also known as top surgery) is the surgical removal of breasts and the construction of a more masculine chest. There are several different surgical techniques depending on various factors.
Phalloplasty
A phalloplasty is the surgical creation of an artificial penis, scrotal sac and testes. It involves taking skin from a donor site to create the penis. An insert is then used in order to make the penis erect when desired.
Metoidioplasty
A metoidioplasty is a non-reversible surgical creation of a mini phallus which uses existing genital tissue to create a small penis. While the phallus created is very small, patients also have a urethral lengthening which enables them to urinate when standing up.
Hysterectomy
A hysterectomy is a surgical procedure to remove the womb (uterus).
Transfeminine (including non-binary) people may want to access:
Vaginoplasty surgery
A vaginoplasty is an operation which aims to remove the penis and testes and create a vagina, which is either sexually functioning or not.
Vulvoplasty
A vulvoplasty is a type of surgery that uses skin and tissue from a penis to create the outside parts of a vagina (except for the vaginal canal).
Orchidectomy
Orchidectomy is a surgical procedure to remove a testicle.
Not all people choose to have surgery. As with any treatment, surgery comes with a number of risks as well as benefits. Therefore, it's important that you consider whether this is an appropriate option for you and if you're ready for a referral. Our staff can help support and make recommendations for surgery for those who are suited to the available operations.
Psychological support
The psychology team at the Sussex Gender Service will provide psychological support for people experiencing psychological, emotional or relational distress relating to or linked to their gender identity.
We are a team of LGBTQ+ people and dedicated allies working collaboratively to bring together a broad range of expertise and experience.
The team is made up of a range of professionals including our administrators, care navigators, nurses, speech and language therapist, psychologists, GPs, service manager and clinical lead. We work closely with our local community of trans, non-binary and intersex people in developing and delivering our service.
Find out more about the roles within the team:
Clinical lead
Provides clinical leadership to the Sussex Gender Service and is responsible alongside the service manager for the delivery and implementation of the Sussex Gender Service.
Service manager
Responsible for the delivery and implementation of the Sussex Gender Service.
Nurses
Provide specialist assessments and follow up appointments with patients as well as access to some interventions.
GPs
Provide specialist assessments and make referrals for hormone treatment, surgery and other interventions/treatment pathways.
Psychologists
Offer therapeutic sessions to patients who are experiencing psychological, emotional or relational distress relating to or linked to their gender identity. They have expertise in working with people who are neurodivergent.
Speech and language therapist
Provides a specialist speech and language therapy service to patients.
Admin coordinator and support workers
Contacts patients and helps to book appointments. They also help the team with other administration, such as processing letters, ordering equipment, organising diaries and taking minutes for meetings.
Care navigators
Provide a coordinated approach of essential practical support and non-clinical advice to individuals who are accessing or wishing to access the service.
Our values at the Sussex Gender Service
1. Our service strives to be anti-oppressive
We recognise and acknowledge the historical and ongoing harm that the transgender community experiences. We think very carefully about privilege, power and intersectionality and provide training on this to our team. We do all that we can to take a stand against any form of transphobia.
2. Support is compassionate, respectful and trauma informed
We endeavour to make sure that everyone who comes through the Sussex Gender Service has a high-quality service that considers individual needs and adjustments in a sensitive way. We are committed to making sure that everyone can feel comfortable and safe to tell their narrative.
3. Collaboration with service users and our community
The Sussex Gender Service has worked hard to involve the trans, non-binary or intersex (TNBI) community in Sussex in the development and mobilisation of the service. This is an ongoing priority for the service. We believe it is important to involve service users of different gender, race, sexual orientation, disability and class.
4. Psychological safety
We aim to create a safe, supportive space for service users to explore their gender journey. We support trans and non binary people to be well informed about their choices by sharing knowledge and options.
We also consider psychological safety within our team a priority. We encourage team members to be non-judgemental, ask questions and reflect on learning points. We have regular reflective practice in the team.
5. Accountability and learning
We invite feedback about the service and aim to respond to everything that is raised. We acknowledge any mistakes and challenges that occur. We value learning and competencies and this is reflected in the training that all our team members access.
Our vision
This describes our purpose, gives direction for our behaviours and provides inspiration for our work:
A collaborative, respectful and holistic approach, valuing each individual experience, meeting TNBI people where they are in their journey and providing excellent care. We prioritise reflection and learning from our work alongside the input of our community groups.
Our mission
This clarifies our vision and outlines the primary objective of our service:
We provide compassionate, safe, supportive and holistic care to TNBI people to enable them to live as their most authentic selves.
- To be eligible to join the Sussex Gender Service waiting list you must be on the waiting list for an adult NHS gender identity clinic
- You must have joined that waiting list prior to 31 March 2023
- You must have been registered with a Sussex GP prior to 31 March 2023
- You must be 17 or older on 31 March 2023
- You must still be currently under the care of a Sussex GP
- You have not had an appointment with another NHS gender identity clinic.
Our admin team are currently contacting patients who are eligible to transfer to our waiting list. We will be contacting patients in date order. The patients that have been waiting the longest will be contacted first.
At present we are still recruiting and training staff. We started seeing patients from the beginning of October 2023 but have not yet reached full capacity.
We are currently contacting people who were accepted onto a gender clinic waiting list up until the date 08/06/2021.
You may need to turn to someone for help, advice and support – this is where our Patient Advice and Liaison Service (PALS) can help.
PALS is a confidential advice and support service that can help you sort out any concerns that you may have about any aspect of your care.
- Call: 0300 304 2198
- Email: pals
@spft.nhs.uk - Write to: Patient Advice and Liaison Service, Swandean, Arundel Road, Worthing, West Sussex, BN13 3EP.
You can also share your feedback via our Sussex Experience Survey.
Let us know how you'd like to get involved and we'll be in touch.
Email: sussexgenderserviceinfo
If you'd like to find out how people have been working with us to develop the Sussex Gender Service, please read our engagement summary.
Download our newsletter below, or register to join our mailing list.
- Sussex Gender Service newsletter: September 2024
- Sussex Gender Service newsletter: August 2024
- Sussex Gender Service newsletter: July 2024
- Sussex Gender Service newsletter: June 2024
- Sussex Gender Service newsletter: May 2024
- Sussex Gender Service newsletter: April 2024
- Sussex Gender Service newsletter: March 2024
- Sussex Gender Service newsletter: February 2024
- Sussex Gender Service newsletter: January 2024
- Sussex Gender Service newsletter: December 2023
If you would like to sign up to our monthly newsletter please register by sending your email address to: SussexGenderServiceInfo